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Thank you so much to our 3 Brighton Marathon runners who completed the marathon.
Thank you so much to our 3 Brighton Marathon runners who completed the marathon in such amazing times !!, Martin Spurr 3 hours 54 mins,...
suestewartpseudo
Apr 171 min read
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Fundraising event - Maharaja Benfleet
Thank you to everyone who came to the Maharaja Benfleet on Wednesday night and to everyone who bought raffle tickets and to all the...
suestewartpseudo
Apr 171 min read
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Customers of Rodeos have raised an amazing £18.004 for our charity
Many thanks to Simon Parton aka the Sheriff of Rodeos Wolverhampton for his continued support of our charity . To date Simon and the...
suestewartpseudo
Apr 161 min read
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William is fundraising for PORT
Please donate to Williams page if you can here I'm raising money for the Pseudo Obstruction Research Trust (PORT) by riding the Fred...
suestewartpseudo
Apr 161 min read
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PIPO family fun day
Please save the date . PORT will be attending this PIPO family fun day and would love to meet as many of our families as possible....
suestewartpseudo
Apr 161 min read
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Run the Big Half in aid of PORT Charity
Run the Big Half in aid of PORT Charity on Sunday 7th September 2025. Set in the heart of London starting by Tower Bridge and finishing...
suestewartpseudo
Nov 21, 20241 min read
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Apply for Funding- Pseudo-Obstruction Research Trust’s (PORT) yearly Small Grants Round
The Pseudo-Obstruction Research Trust’s (PORT) Small Grants Round is NOW OPEN! PORT funds research into chronic intestinal...
suestewartpseudo
Nov 21, 20241 min read
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Lisa Story
After years in and out of hospital and increasingly alarming diagnoses, I consider myself lucky to be alive today. I’m a 36-year-old mum,...
suestewartpseudo
Sep 28, 20244 min read
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PORT ARE FUNDING RESEARCH IN 2023
PORT are very proud to announce that we have agreed to fund the following project, commencing in September 2023, for an 18 month...
suestewartpseudo
Jul 20, 20241 min read
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UTILITY OF MOTILITY-MRI IN THE ASSESSMENT OF FOREGUT NEUROMUSCULAR FUNCTION IN CHILDREN WITH INTESTINAL PSEUDO OBSTRUCTION.
Paediatric intestinal pseudo-obstruction (PIPO) encompasses a group of rare severe disorders affecting the gastrointestinal nerves and...
suestewartpseudo
Oct 1, 20231 min read
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Rugby Shirt auctioned for PORT charity
Our wonderful member Louise Macdonald and her mum managed to get Finn Russel to donate his rugby shirt and sign it to help raise money...
suestewartpseudo
Sep 10, 20231 min read
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THE EFFECTIVENESS OF AN ACCEPTANCE AND COMMITMENT THERAPY (ACT) BASED INTERVENTION ON REDUCING PSYCHOLOGICAL DISTRESS IN THOSE WITH GASTRO-INTESTINAL DYSMOTILITY.
Gastrointestinal dysmotility relates to a spectrum of disorders where there is disruption to the movement of food through the...
suestewartpseudo
Aug 8, 20231 min read
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A NEW APPROACH TO GASTROPARESIS AND NAUSEA
The study, funded through PORT ( Pseudo Obstruction Research Trust ), will use human stomach to measure the contractions of the muscle...
suestewartpseudo
Sep 1, 20221 min read
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Sean Lock, PORT patron, sadly passes away.
We are very sad to share the news that our wonderful patron Sean Lock has passed away. Sean attended our first PORT charity ball, as a...
suestewartpseudo
Aug 18, 20211 min read
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HARNESSING MRI FOR THE DIAGNOSIS OF CHRONIC INTESTINAL PSEUDO OBSTRUCTION FUNDED BY PSEUDO OBSTRUCTION RESEARCH TRUST (PORT).
The Nottingham Gastrointestinal Magnetic Resonance Imaging (GI MRI) group has spent 20 years developing the use of MRI to evaluate the...
suestewartpseudo
Jul 1, 20212 min read
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Rare Diseases Day
The themes of Rare Disease Day 2021 – rare is many, rare is strong, rare is proud. This is our story representing these themes. Pseudo...
suestewartpseudo
Feb 28, 20213 min read
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Isla’s Story
Isla is 9 years old and was born with a rare condition that has only been partly diagnosed. Her younger years were mostly spent in...
suestewartpseudo
Jan 16, 20212 min read
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Ellie-Mai’s Story
Ellie-Mai was born in 2011 at 42 weeks. She is my third child and I had an unremarkable pregnancy and straightforward labour. As soon as...
suestewartpseudo
Jan 8, 20212 min read
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Sadie’s Story
Sadie made a dramatic entrance into the world on the 10th October 2015 and has pretty much turned our world upside down ever since. We...
suestewartpseudo
Jan 7, 20214 min read
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Ollie’s Story
Ollie (the happiest lad alive) was born on 28th August, after a 30 something hour labour, via vacuum due to low heart rate, and other...
suestewartpseudo
Jan 6, 20214 min read
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