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suestewartpseudo
Feb 28, 20172 min read
CIPO Included in the 100,000 Genomes Project
P.O.R.T. is delighted to be able to say that Chronic Intestinal Pseudo Obstruction is included as a condition on the 100,000 Genomes...
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suestewartpseudo
Feb 25, 20172 min read
Fundraising Update – Early 2017
We’ve had some fantastic support recently! Here’s a little fundraising update and a look ahead to the rest of 2017 in terms of...
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suestewartpseudo
Feb 25, 20171 min read
P.O.R.T. Charity Bags
P.O.R.T. are now selling tote bags with our logo on, they cost £4 and 100% is donated to P.O.R.T. We will soon also have shopping bags...
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suestewartpseudo
Feb 10, 20171 min read
Potential New P.O.R.T-funded Research In The Peer-Review Stage
In 2016, P.O.R.T. put out a research call with help from Bowel and Cancer Research, and we received three proposals. In November, the...
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suestewartpseudo
Jan 31, 20171 min read
Walk For P.O.R.T. in the Colourthon (Southend)
Would you like to get fit and do a walk that’ll make a big difference to a small charity? Well you can! The Colourthon, a walk around...
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suestewartpseudo
Oct 7, 20164 min read
Alby’s Story
Our six-year old son Alby became ill in June 2015, with what seemed like a tummy bug. He was still vomiting (mostly bile) and in severe...
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suestewartpseudo
Sep 10, 20161 min read
P.O.R.T. Partners With A Bear Named Buttony
P.O.R.T has teamed up with A Bear Named Buttony to provide our P.O.R.T. children (and some adults) with a Buttony Bear, which mirrors...
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suestewartpseudo
Aug 10, 20161 min read
P.O.R.T. Released Our 10th Anniversary Impact Report
P.O.R.T. Trustee Lucy put together an Impact Report for our 10th Anniversary, looking back on the first ten years of P.O.R.T’s work. We...
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suestewartpseudo
Apr 5, 20165 min read
Charlie’s Story
Charlie was born 4 days overdue on the 28th August 2008. Due to prolonged labour with no progression and a drop in Charlie’s heart rate,...
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suestewartpseudo
Mar 22, 20163 min read
Bob’s story
“Some people never meet their hero I gave birth to mine” Meet Robbie Beer age 5, better known as “Wee Bob”, lives with his mum Lesley,...
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suestewartpseudo
Oct 9, 20152 min read
P.O.R.T. Patient Information Day – 9th October 2015
Pseudo Obstruction Research Trust Patient Information Day 2015 On the 9th October 2015 P.O.R.T. held its first Patient Information Day,...
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suestewartpseudo
Aug 20, 20154 min read
Emily’s Story
Our beautiful Emily was born on 21st March 2003, the hospital visits started pretty much straight away. Emily was a “sicky” baby and...
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suestewartpseudo
Jun 30, 20157 min read
EDS/JHS & CIPO – PROFESSOR QASIM AZIZ & DR ASMA FIKREE
Identification of CIPO subgroups with underlying connective tissue disorders, and the assessment of GI anatomy, motility and response to...
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suestewartpseudo
May 1, 20155 min read
Richard’s Story
I had been fit and healthy weighing about 12st through all my younger years and indeed for the first half of my working life. In my early...
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suestewartpseudo
Jun 30, 20141 min read
PAEDIATRIC MANOMETRY CATHETERS – GI PHYSIOLOGY UNIT
PORT are pleased to be donating £20,000 to purchase two combined pressure-impedance catheters for The Royal London Hospital. The...
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suestewartpseudo
Jun 30, 20132 min read
PAEDIATRIC GI PHYSIOLOGY UNIT – THE ROYAL LONDON HOSPITAL
Funding of the Royal London Paediatric G I Physiology unit During 2013/14 PORT are extremely proud to be funding at a cost of £40,000 a...
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suestewartpseudo
May 22, 20131 min read
Buckingham Palace Garden Party
Chairperson Sue Stewart, her husband Barry and Trustee Sonia Frost and her husband Ian attended a Buckingham Palace Garden Party on...
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suestewartpseudo
Oct 3, 20125 min read
PROFESSOR JO MARTIN – ENZYME DEFECT IN CIPO
PORT are extremely pleased to be funding the following research project at a cost of £40, 000.Prof . Jo Martin will lead this project....
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