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NEWS


Run the Big Half in aid of PORT Charity
Run the Big Half in aid of PORT Charity on Sunday 7th September 2025. Set in the heart of London starting by Tower Bridge and finishing...
Rugby Shirt auctioned for PORT charity
Our wonderful member Louise Macdonald and her mum managed to get Finn Russel to donate his rugby shirt and sign it to help raise money...


Sean Lock, PORT patron, sadly passes away.
We are very sad to share the news that our wonderful patron Sean Lock has passed away. Sean attended our first PORT charity ball, as a...


Rare Diseases Day
The themes of Rare Disease Day 2021 – rare is many, rare is strong, rare is proud. This is our story representing these themes. Pseudo...


Feeding Tube Awareness Week
During Feeding Tube Awareness Week, we posted awareness posts on our social media accounts-Instagram, Facebook & Twitter. For many with ...
PORT DIGEST is now finished and is avialable to read online!
PORT has sent it’s newsletter, PORT DIGEST, out to members and is available online. The first edition of PORT Digest is now finished and...


Facebook donations and fundraisers raise money for PORT!
Facebook donations have been a very useful way for PORT to raise money. Since PORT signed up to Facebook payments, at the end of...
Donation, from The Blakemore Foundation, towards printing PORT’s information booklet.
PORT received a monetary donation, of £100, from The Bakemore Foundation. This will go towards printing our information booklets. We are...
First birthday fundraiser, for PORT, raises £150!
Many thanks to Aranee Navaratnam for organising a Birthday Fundraiser, through Facebook. She raised an amazing £150 for PORT Charity....
Charity single to raise money for PORT
PORT members have given their pictures, which will be used for a charity single. The funds for the single will go to PORT. This is a...
The Unicorn Pub donates money, to PORT, from collection pot.
Many thanks to the customers and staff of The Unicorn Pub, Marden for your kind donation of £17.67 from our charity collection pot.
Fundraising from Dreams Beauty Salon
Many thanks to Cheryl East, and all the staff and customers of Dreams Beauty Salon. They have donated £108.00 to PORT Charity, from the...


Girls Bake Sale raises money for PORT charity!
Many thanks to beautiful brave Nyla and her friends Holly, Libby, Darcy, Megan, Oonagh and Numratha. The girls, who attend Bristol...


PORT sign up to Facebook payments and add a donate button on the charity page.
PORT are now signed up to Facebook payments. As well as now having a donate button, on our charity page, people can also create...
The Earl Grey Pub Race Night raised £112 for PORT!
Many thanks to Kaylie Finch, and the Earl Grey Pub. The Earl Grey pub held a Race Night last night (11th October) and donated the £112...
PORT sends out small grant applications
This week PORT sent out small grant applications to various consultants and researchers. The research grant provided is up to £50,000....
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