Thank you so much to our 3 Brighton Marathon runners who completed the marathon in such amazing times !!, Martin Spurr 3 hours 54 mins,...

Thank you to everyone who came to the Maharaja Benfleet on Wednesday night and to everyone who bought raffle tickets and to all the...

Many thanks to Simon Parton aka the Sheriff of Rodeos Wolverhampton for his continued support of our charity . To date Simon and the...

Please donate to Williams page if you can here I'm raising money for the Pseudo Obstruction Research Trust (PORT) by riding the Fred...

Please save the date . PORT will be attending this PIPO family fun day and would love to meet as many of our families as possible....

Run the Big Half in aid of PORT Charity on Sunday 7th September 2025. Set in the heart of London starting by Tower Bridge and finishing...

Our wonderful member Louise Macdonald and her mum managed to get Finn Russel to donate his rugby shirt and sign it to help raise money...

We are very sad to share the news that our wonderful patron Sean Lock has passed away. Sean attended our first PORT charity ball, as a...

The themes of Rare Disease Day 2021 – rare is many, rare is strong, rare is proud. This is our story representing these themes. Pseudo...

During Feeding Tube Awareness Week, we posted awareness posts on our social media accounts-Instagram, Facebook & Twitter. For many with ...

PORT has sent it’s newsletter, PORT DIGEST, out to members and is available online. The first edition of PORT Digest is now finished and...

Facebook donations have been a very useful way for PORT to raise money. Since PORT signed up to Facebook payments, at the end of...

PORT received a monetary donation, of £100, from The Bakemore Foundation. This will go towards printing our information booklets. We are...

Many thanks to Aranee Navaratnam for organising a Birthday Fundraiser, through Facebook. She raised an amazing £150 for PORT Charity....

PORT members have given their pictures, which will be used for a charity single. The funds for the single will go to PORT. This is a...

Many thanks to the customers and staff of The Unicorn Pub, Marden for your kind donation of £17.67 from our charity collection pot.