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P.O.R.T. Patient Information Day – 9th October 2015

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Pseudo Obstruction Research Trust Patient Information Day 2015

On the 9th October 2015 P.O.R.T. held its first Patient Information Day, which was a huge success. It brought together patients, family members and professionals to share knowledge about the CIPO and related conditions as well as for patients and family members to meet others who truly understand, forging friendships and gaining a support network. The day was very informative, with talks from a range of consultants with different areas of expertise, and patients had the chance to ask questions as we had Q&A sessions with the consultants after their talks. This meant knowledge was shared, questions could be asked, but also, patients could feed back to consultants what was most troubling and most important to them, and patients came away with a better understanding of their condition and its treatment and management.

In attendance were P.O.R.T. Chairperson Sue Stewart, and Trustees Sonia Frost and Lucy Watts MBE, with consultants Professor Qasim Aziz, Dr Adam Farmer, Dr Nigel Meadows, Dr Nikhil Thapar, Dr Michael Glynn and Dr Jayne Gallagher, along with P.O.R.T-funded research nurse Laura Brockway, and approximately 60 patients and family members.

Feedback was overwhelmingly positive and we hope to hold more Patient Days in the future.

Speeches were as follows:

Professor Qasim Aziz – What Is CIPO?

Dr Adam Farmer – The investigation and management of CIPO.

Dr Nikhil Thapar – What’s new in CIPO research?

Dr Nigel Meadows – CIPO in children and young people.

Dr Michael Glynn – Nutrition in CIPO.

Dr Jayne Gallagher – Pain and pain management in CIPO.

Two patients, Lucy Watts MBE, and Richard Cazenove, also shared their stories.

Below are the videos from our Patient Information Day in October 2015. Our patients found the event very useful, so we hope you will enjoy being able to view the talks given by professionals, as well as two patients.

Professor Qasim Aziz talks about Chronic Intestinal Pseudo Obstruction

 

Dr Nikhil Thapar talks about CIPO Research

 

Dr Nigel Meadows talks about CIPO in children and young people

 

Dr Adam Farmer talks about the investigation and management of CIPO

 

Dr Michael Glynn talks about nutrition in CIPO

 

Dr Jayne Gallagher talks about pain and management of pain in CIPO

 

Lucy Watts MBE talks about her experiences with CIPO and transition into adult services

 

Richard Cazenove talks about his experiences with CIPO

 Some photos from the event

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