We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how.
CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below.
Sue has 4 daughters & 4 grandchildren. Two of her daughters have severe gut dysmotility, Becky, has CIPO. Sue set up the charity with Sonia, in 2006, after they met at The Royal London Hospital.
Sonia is the mother of Samuel & “Angel” Emily, who passed away from CIPO complications at the age of 2. Sonia and Sue have become close friends since meeting at the Royal London Hospital.
Nigel, a consultant gastroenterologist for 30 years, established the department at The Royal London Hospital, and specialised in intestinal dysmotility. He’s a keen supporter of PORT, & it’s funding of research.
Barry has worked in the Investment & Financial Services industry for over 30 years. He has now retired, so is able to devote more time to raising PORT’s profile, and fundraising.
Ian is ‘Angel’ Emily’s dad, and is a Senior Supervisor at Ford Motor Company where he has worked for the last 20 years.
Kilian has a son, Charlie, who has CIPO. Kilian is a software consultant, rugby player & family man! He’s keen to raise funds & the profile of PORT!
Becky is Sue's daughter, diagnosed with CIPO age 14 and is a Personal Assistant to the Chairman of Southend United Football Club.
Ashlee is mum to Isla, who suffers from CIPO. Ashlee understands what it's like to be a parent of a child with the condition.
Louise is married to Nick, with a daughter. She was a nurse and has CIPO. Louise hopes to use her experiences to help PORT.
Rachael had CIPO from childhood. She also had a multi organ transplant in 2013. Rachael hopes to use her experiences to help others.
We have been successful in obtaining a charity ballot place in the London Marathon, on 2 October 2022. Aranee Navaratnum will be running for #TEAMPORT. Also running for our charity are Arran Stanier and James Blythe. We’d be grateful...
Thank you to our trustee Kilian Fitzsimmons-Wilson, and for his friend Chef Daniel Cadwell for including PORT in this fundraiser.