Blog

Many thanks to beautiful brave Nyla and her friends Holly, Libby, Darcy, Megan, Oonagh and Numratha. The girls, who attend Bristol Cathedral Choir School, organised a bake sale and raised £66.74 for PORT Charity.  Beautiful Nyla suffers with CIPO. Thanks so much for supPORTing us!

This week PORT sent out small grant applications to various consultants and researchers. The research grant provided is up to £50,000. This year PORT funded 3 projects at a total cost of £150,000. Please look at the research section of our website for details of these. PORT would like to fund at least one project in 2020. Please consider SupPORTing our charity by fundraising for us. We cannot fund future research into CIPO/Dysmotility/Gastroparesis without the funds . It doesn’t have to be a large event, all money raised counts!  Some members have been kind enough to donate monthly via a direct debit. If you would like to help in this way please contact us for our charity bank details- thank you!


 

This year, trustees Barry Stewart and Dr Nigel Meadows represented PORT, at The Big Bowel Event. This year the event was held at CCT Venues, on Friday 4th October, from 10am-4pm.

The event gives the opportunity for researchers to talk to the public about their projects, and make use of their insights as patients, family and friends. Typically, the morning gives an insight into the research, and the opportunity for involvement. The afternoon brings academics, and the public together to help shape the best research. This year PORT had a stand at the event-an opportunity to increase awareness of our charity, and the work we do.


 

Today, Terry Chamberlain, of Thurrock Bowls Club, and Peter Madgewick, of The Drums Bowls Club, presented a cheque for £725,00 to Trustee Barry Stewart . The Bowls clubs have been fundraising for PORT Charity during 2019.

Also a special mention to the lovely Serena-Jayne Madgewick for your continued supPORT. We would like to thank you all.

 

On 21st September a group of children took part in a 5K Woodland walk to raise money for PORT charity. By collecting sponsorship they raised over £800-an incredible achievement! Well done to both the children and their families, for organising the walk.

PORT kids run with medals

On Thursday 13th June, Sue Stewart attended a meeting at the  B&CR offices, Whitechapel. She met Neele Dellscaft, Postdoctoral Researcher of St. Peter Mansfield Imaging Centre, Nottingham University and Deborah Gilbert, CEO of B&CR. The meeting was to discuss protocol for the MRI research study, PORT have funded, to ensure the project is patient friendly. This proved to be a very successful meeting, and any concerns were addressed positively.

PORT are proud to be funding 3 projects this year at a cost of £149,544. To fund this research PORT is using reserve funds. Therefore fundraising over the next 2 years is even more important, so please do support our charity.

The first project involves harnessing MRI for the diagnosis of CIPO funded by PORT. PORT are funding £49,554 for this study and will build on previous research from The Nottingham Gastrointestinal Magnetic Resonance Imaging group and colleagues at University College and Queen Mary University of London. Using MRI should allow CIPO to be diagnosed by a test that is accessible and sensitive.

Additionally, PORT is funding £50,000 to study the potential of developing neurons for tissue repair. The team is being led by Professor Joe Martin, Professor of Pathology at Queen Mary, University of London. The potential of developing a therapy that could seed and migrate new functioning nerve cells could have a significant impact on quality of life, and potentially be a life line for some of the most poorly.

Finally, PORT is funding a study led by Professor Gareth Sanger, which will study a new approach to gastroparesis and nausea. This study in human tissue will help to pin point this mechanism, paving the way to the development of new treatments to help patients who suffer with this debilitating symptom.

To find out more about the 3 research projects PORT are funding this year please click here to go to the research section of our wesbite.