Many thanks to Kaylie Finch, and the Earl Grey Pub. The Earl Grey pub held a Race Night last night (11th October) and donated the £112 raised to PORT.
The Earl Grey Pub Race Night raised £112 for PORT!
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- 11 October 2019
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PORT sends out small grant applications
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- 08 October 2019
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This week PORT sent out small grant applications to various consultants and researchers. The research grant provided is up to £50,000. This year PORT funded 3 projects at a total cost of £150,000. Please look at the research section of our website for details of these. PORT would like to fund at least one project in 2020. Please consider SupPORTing our charity by fundraising for us. We cannot fund future research into CIPO/Dysmotility/Gastroparesis without the funds . It doesn’t have to be a large event, all money raised counts! Some members have been kind enough to donate monthly via a direct debit. If you would like to help in this way please contact us for our charity bank details- thank you!
PORT attends The Big Bowel Event.
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- 04 October 2019
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This year, trustees Barry Stewart and Dr Nigel Meadows represented PORT, at The Big Bowel Event. This year the event was held at CCT Venues, on Friday 4th October, from 10am-4pm.
The event gives the opportunity for researchers to talk to the public about their projects, and make use of their insights as patients, family and friends. Typically, the morning gives an insight into the research, and the opportunity for involvement. The afternoon brings academics, and the public together to help shape the best research. This year PORT had a stand at the event-an opportunity to increase awareness of our charity, and the work we do.
Trustee, Barry Stewart, presented with cheque for £725!
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- 03 October 2019
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Today, Terry Chamberlain, of Thurrock Bowls Club, and Peter Madgewick, of The Drums Bowls Club, presented a cheque for £725,00 to Trustee Barry Stewart . The Bowls clubs have been fundraising for PORT Charity during 2019.
Also a special mention to the lovely Serena-Jayne Madgewick for your continued supPORT. We would like to thank you all.
Children’s 5K woodland walk raises over £800!
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- 21 September 2019
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On 21st September a group of children took part in a 5K Woodland walk to raise money for PORT charity. By collecting sponsorship they raised over £800-an incredible achievement! Well done to both the children and their families, for organising the walk.
Colourthon 2019-Well done to all involved!
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- 06 July 2019
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Many thanks to everyone who supported PORT charity by taking part in the colourthon on Saturday 6th July. We raised £6,273.75 with donations still being made!
Sue Stewart, Chairperson of PORT, attends meeting to discuss MRI research study
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- 13 June 2019
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On Thursday 13th June, Sue Stewart attended a meeting at the B&CR offices, Whitechapel. She met Neele Dellscaft, Postdoctoral Researcher of St. Peter Mansfield Imaging Centre, Nottingham University and Deborah Gilbert, CEO of B&CR. The meeting was to discuss protocol for the MRI research study, PORT have funded, to ensure the project is patient friendly. This proved to be a very successful meeting, and any concerns were addressed positively.
The fantastic research projects PORT are funding this year!
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- 17 May 2019
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PORT are proud to be funding 3 projects this year at a cost of £149,544. To fund this research PORT is using reserve funds. Therefore fundraising over the next 2 years is even more important, so please do support our charity.
The first project involves harnessing MRI for the diagnosis of CIPO funded by PORT. PORT are funding £49,554 for this study and will build on previous research from The Nottingham Gastrointestinal Magnetic Resonance Imaging group and colleagues at University College and Queen Mary University of London. Using MRI should allow CIPO to be diagnosed by a test that is accessible and sensitive.
Additionally, PORT is funding £50,000 to study the potential of developing neurons for tissue repair. The team is being led by Professor Joe Martin, Professor of Pathology at Queen Mary, University of London. The potential of developing a therapy that could seed and migrate new functioning nerve cells could have a significant impact on quality of life, and potentially be a life line for some of the most poorly.
Finally, PORT is funding a study led by Professor Gareth Sanger, which will study a new approach to gastroparesis and nausea. This study in human tissue will help to pin point this mechanism, paving the way to the development of new treatments to help patients who suffer with this debilitating symptom.
To find out more about the 3 research projects PORT are funding this year please click here to go to the research section of our wesbite.
Safeguarding Policies
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- 09 October 2018
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Pseudo Obstruction Research Trust (PORT) reg 1114217
Safeguarding Policy – August 2018
This policy applies to all staff, trustee’s, and volunteer workers, or anyone working on behalf of Pseudo Obstruction research Trust (referred to as PORT within this document).
The purpose of this policy is to,
Protect children, young people, and their parents, who receive any services from PORT.
Protect adults and vulnerable adults who receive any services from PORT.
To provide staff and volunteers with overarching principles that guide our approach to safeguarding.
PORT believes that a child young person adult or vulnerable adult should never experience abuse of any kind. We have a responsibility to promote the welfare of all and to keep them safe. We are committed to practise in a way that protects them.
Legal Framework
This policy has been drawn up on the basis of law and guidance that seeks to protect children and adults namely:
Data Protection act 1998
Human Rights Act 1998
Sexual Offences Act 2003
Safeguarding Vulnerable Groups Act 2006
Protection of Freedoms Act 2012
Children and Families Act 2014
Special Educational Needs and Disability (SEND) code of practice, 0 to 25 years, statutory guidance for organisations which work with and support children, and young people who have special educational needs or disabilities HM Government 2014.
Information sharing Advice for practitioners providing safeguarding services to children young people, parents, adults and carers. HM Government 2015.
Working together to safeguarding children a guide to inter agency working to safeguard and promote the welfare of children HM Government 2015.
We recognise that
The welfare of the child is paramount as enshrined in the Childrens Act 1989.
All children regardless of age, disability, gender assignment, race, religion, or belief, sex or sexual orientation.
Some children are additionally vulnerable because of the impact of previous experiences, their level of dependency, communications needs or other issues.
Working in partnership with children young people, their parents, carers and other agencies is essential in promoting young peoples welfare.
We will seek to keep children and young people safe by;
Valuing them listening to them with respect.
Appointing a designated Safeguarding officer and a deputy.
Adopting child protection and safeguarding policies through procedures and a code of conduct for staff and volunteers.
Providing effective management for staff and volunteers through supervision support and training.
Recruiting and storing information professionally and securely. Sharing information about safeguarding and good practice with children and families staff and volunteers via e mail, and/or one to one discussions.
Using our safeguarding procedures to share concerns and relevant information with agencies who need to know, and involving children, young people, parents, families, and carers appropriately.
Using procedures to manage any allegations against staff and volunteers appropriately.
Creating and maintaining an Anti-Bullying environment and ensuring that we have a policy and procedure to help us deal effectively with any bullying that does arise.
Ensuring we have effective complaints and whistleblowing measures in place.
Contact details
Designated Safeguarding officer (DSO)
Sue Stewart 07939 885699 / sue_stewart_pseudo@hotmail.co.uk
Deputy DSO
Rebecca Stanier 07903 664386 / Rebeccamstanier@outlook.com
CEOP
www.ceop.police.uk
PORT are pleased to welcome Zander Fagerson as our new Patron!!
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- 11 September 2018
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Zander Fagerson is a Scottish International rugby player who plays for Glasgow warriors. Zander made his debut for Scotland in the six nations match against England at Murrayfield on 6th February 2016. Zander has supported PORT to date by donating signed rugby sportswear for auction. Zander had never heard of the illness Chronic Intestinal Pseudo Obstruction (CIPO) until he met Louise MacDonald, and her mum Carole who told Zander there is no cure. ‘For me personally I think that’s unacceptable with the level of expertise in medicine. To then see Louise at the rugby, and how happy she was there, supporting Glasgow and Scotland, forgetting about her condition and enjoying the day really got to me. This is why I am proud to become a Patron/Ambassador for PORT. I may not be able to find a cure, but if I can raise a bit of awareness or get a few more sufferers to a rugby game and try and give them some relief , however small, I would feel I was making a difference.
