Volunteers

  • Becky Stanier

    Trustee

    Becky is Sue's daughter, diagnosed with CIPO age 14 and is a Personal Assistant to the Chairman of Southend United Football Club.

  • Ashlee Johnson

    Trustee

    Ashlee is mum to Isla, who suffers from CIPO. Ashlee understands what it's like to be a parent of a child with the condition.

  • Abby Andrews

    Trustee

    Abby’s daughter Phoebe had severe dysmotility her whole life and spent many years in hospital, suffering from this painful and debilitating condition. Sadly, Phoebe died in January 2022, just after her 13th birthday. PORT supported Abby over many years and she wanted to give back.