Stories
Latest stories
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P.O.R.T. Patient Information Day – 9th October 2015
October 9, 2015
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Potential New P.O.R.T-funded Research In The Peer-Review Stage
February 10, 2017
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Becky’s Story
August 20, 2015
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Richard’s Story
May 1, 2015
About
Welcome to the Pseudo Obstruction Research Trust (P.O.R.T.) Website. P.O.R.T. was formed in February 2006 by two families who have children who have died from Chronic Intestinal Pseudo-obstruction (C.I.P.O.) or are still suffering from this illness. The aim of the charity is to fund research into C.I.P.O. and raise public and professional awareness into this serious and sometimes fatal illness. With £650,000 of research and equipment funded so far, we need support to raise a minimum of £50,000 per year to fund this research.
Our Team
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Sue Stewart
Chairperson/Co-FounderSue has 4 daughters & 4 grandchildren. Two of her daughters have severe gut dysmotility, Becky, has CIPO. Sue set up the charity with Sonia, in 2006, after they met at The Royal London...
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Sonia Frost
Trustee/Co-FounderSonia is the mother of Samuel & “Angel” Emily, who passed away from CIPO complications at the age of 2. Sonia and Sue have become close friends since meeting at the Royal London Hospital.
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Dr Nigel Meadows MD FRCPCH
TrusteeNigel, a consultant gastroenterologist for 30 years, established the department at The Royal London Hospital, and specialised in intestinal dysmotility. He’s a keen supporter of PORT, & it’s funding of research.
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Barry Stewart
TrusteeBarry has worked in the Investment & Financial Services industry for over 30 years. He has now retired, so is able to devote more time to raising PORT’s profile, and fundraising.
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Kilian Fitzsimmons-Wilson
TrusteeKilian & his wife Lindsey have a son, Charlie, who has CIPO. Kilian is a software consultant, keen rugby player & family man! He’s keen to raise funds & the profile of PORT!
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Becky Stanier
TrusteeBecky is Sue's daughter, diagnosed with CIPO age 14 and is a Personal Assistant to the Chairman of Southend United Football Club.
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Louise McAuliffe Roberts
TrusteeMarried to Nick and with a daughter Chloe, Louise was a nurse on a neonatal unit prior to being medically retired. She has CIPO and Autonomic Neuropathy caused by type 1 Diabetes.
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Ashlee Johnson
TrusteeAshlee is mum to Isla, who suffers from CIPO. Ashlee understands what it's like to be a parent of a child with the condition.
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Testimonials
Upcoming Events
Port Charity Curry Night
Thursday 26th September, 7.30 p.m, MAHARAJA restaurant, 338 London Road, Benfleet, SS7 1BG A great evening for the whole family. For further info please contact either Sue Stewart on 07939885699 or Rebecca Stanier on 07903664386
Proud to be funding 3 research projects this year at a cost of £150,000 on behalf of Dr Major of The Nottingham Dis… https://t.co/GLW12G6Qks1 month ago- Please follow & SupPORT @PORTCharity we help raise awareness & fund research into the cruel illness Chronic Intesti… https://t.co/FbDzIW5VHa1 month ago