We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how.
CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below.
Click “Learn More” to find out about P.O.R.T – find out about P.O.R.T, its history and about why it was founded.
Found out what’s been happening with P.O.R.T. – news, updates, fundraising and research.
Could you attend or undertake an event for P.O.R.T.? Click below to find out more.
Our beautiful Emily was born on 21st March 2003, the hospital visits started pretty much straight away. Emily was a “sicky”...
read More“Some people never meet their hero I gave birth to mine”
read MoreFebruary 10, 2017
May 16, 2017
November 21, 2019
April 5, 2016
Sue has 4 daughters & 4 grandchildren. Two of her daughters have severe gut dysmotility, Becky, has CIPO. Sue set up the charity with Sonia, in 2006, after they met at The Royal London Hospital.
Sonia is the mother of Samuel & “Angel” Emily, who passed away from CIPO complications at the age of 2. Sonia and Sue have become close friends since meeting at the Royal London Hospital.
Nigel, a consultant gastroenterologist for 30 years, established the department at The Royal London Hospital, and specialised in intestinal dysmotility. He’s a keen supporter of PORT, & it’s funding of research.
Barry has worked in the Investment & Financial Services industry for over 30 years. He has now retired, so is able to devote more time to raising PORT’s profile, and fundraising.
Ian is ‘Angel’ Emily’s dad, and is a Senior Supervisor at Ford Motor Company where he has worked for the last 20 years.
Kilian has a son, Charlie, who has CIPO. Kilian is a software consultant, rugby player & family man! He’s keen to raise funds & the profile of PORT!
Becky is Sue's daughter, diagnosed with CIPO age 14 and is a Personal Assistant to the Chairman of Southend United Football Club.
Ashlee is mum to Isla, who suffers from CIPO. Ashlee understands what it's like to be a parent of a child with the condition.
Louise is married to Nick, with a daughter. She was a nurse and has CIPO. Louise hopes to use her experiences to help PORT.
Rachael had CIPO from childhood. She also had a multi organ transplant in 2013. Rachael hopes to use her experiences to help others.
Sharing stories, advice and well wishes with others is invaluable when you have a family member with a rare and debilitating illness.
Parent of a child with CIPO
This charity have an invaluable support platform, providing not only incredible contributions to research and treatments, but also providing sufferers and families with a voice.
Patient with CIPO
PORTs efforts provide hope that people living with these conditions might have a better future.
Patient With CIPO
One of the biggest things for me is PORT has given me hope that one day a cure will be found, it gives me comfort that I’m not alone in this battle and it’s given me support and friendship when I’m feeling alone and isolated.
Patient With CIPO
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