• Funding Research To Save Lives

    Funding Research To Save Lives

    We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how.

  • What is C.I.P.O?

    What is C.I.P.O?

    CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below.

  • About P.O.R.T.

    About P.O.R.T.

    Click “Learn More” to find out about P.O.R.T – find out about P.O.R.T, its history and about why it was founded.

  • P.O.R.T. News

    P.O.R.T. News

    Found out what’s been happening with P.O.R.T. – news, updates, fundraising and research.

  • Events

    Events

    Could you attend or undertake an event for P.O.R.T.? Click below to find out more.

Stories

  • Ella’s Story

    Stories March 4, 2016

    Ella was born on the evening of 18th February 2009. At the time we were discharged from the hospital, twenty-four hours...

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  • Emily’s Story

    Stories August 20, 2015

    Our beautiful Emily was born on 21st March 2003, the hospital visits started pretty much straight away. Emily was a “sicky”...

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  • Bob’s story

    Stories March 22, 2016

    “Some people never meet their hero I gave birth to mine”

    read More

Latest stories

About

Welcome to the Pseudo Obstruction Research Trust (P.O.R.T.) Website. P.O.R.T. was formed in February 2006 by two families who have children who have died from Chronic Intestinal Pseudo-obstruction (C.I.P.O.) or are still suffering from this illness. The aim of the charity is to fund research into C.I.P.O. and raise public and professional awareness into this serious and sometimes fatal illness. With £750,000 of research and equipment funded so far, we need support to raise a minimum of £50,000 per year to fund this research.

Learn More Or
Email Us At sue_stewart_pseudo@hotmail.co.uk

Our Team

    • Sue Stewart

      Chairperson/Co-Founder

      Sue has 4 daughters & 4 grandchildren. Two of her daughters have severe gut dysmotility, Becky, has CIPO. Sue set up the charity with Sonia, in 2006, after they met at The Royal London Hospital.

    • Sonia Frost

      Trustee/Co-Founder

      Sonia is the mother of Samuel & “Angel” Emily, who passed away from CIPO complications at the age of 2. Sonia and Sue have become close friends since meeting at the Royal London Hospital.

    • Dr Nigel Meadows MD FRCPCH

      Trustee

      Nigel, a consultant gastroenterologist for 30 years, established the department at The Royal London Hospital, and specialised in intestinal dysmotility. He’s a keen supporter of PORT,  & it’s funding of research.

    • Barry Stewart

      Trustee

      Barry has worked in the Investment & Financial Services industry for over 30 years. He has now retired, so is able to devote more time to raising PORT’s profile, and fundraising.

    • Ian Frost

      Trustee

      Ian is ‘Angel’ Emily’s dad, and is a Senior Supervisor at Ford Motor Company where he has worked for the last 20 years.

    • Kilian Fitzsimmons-Wilson

      Trustee

      Kilian & his wife Lindsey have a son, Charlie, who has CIPO. Kilian is a software consultant, keen rugby player & family man! He’s keen to raise funds & the profile of PORT!

    • Becky Stanier

      Trustee

      Becky is Sue's daughter, diagnosed with CIPO age 14 and is a Personal Assistant to the Chairman of Southend United Football Club.

    • Ashlee Johnson

      Trustee

      Ashlee is mum to Isla, who suffers from CIPO. Ashlee understands what it's like to be a parent of a child with the condition.

    • Louise McAuliffe Roberts

      Trustee

      Married to Nick and with a daughter Chloe, Louise was a nurse on a neonatal unit prior to being medically retired. She has CIPO and Autonomic Neuropathy caused by type 1 Diabetes.

    • Rachael Green

      Trustee

      Rachael had CIPO from childhood. She had a multi organ transplant in 2013. She is now experiencing dysmotility & other problems with her transplanted bowel, so is back on TPN. Rachael hopes to use her experiences to help others.

Testimonials

  • One of the biggest things for me is PORT has given me hope that one day a cure will be found, it gives me comfort that I’m not alone in this battle and it’s given me support and friendship when I’m feeling alone and isolated.

    Patient With CIPO

  • This charity have an invaluable support platform, providing not only incredible contributions to research and treatments, but also providing sufferers and families with a voice.

    Patient with CIPO

  • Sharing stories, advice and well wishes with others is invaluable when you have a family member with a rare and debilitating illness.

    Parent of a child with CIPO

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  • Save the date- Saturday 4th July. One of PORT’s biggest fundraisers! The annual Moonlight (13 miles) and Twillight… https://t.co/dNkUgwGbGf
    @PORTCharity
    1 day ago
  • #FeedingTubeAwarenessWeek Today is the last day of feeding tube awareness week. We hope that our posts have incre… https://t.co/oNnQ8QESpI
    @PORTCharity
    1 week ago
  • #FeedingTubeAwarenessWeek There is a lot of equipment for people to store associated with having tube feeds and… https://t.co/9uyNvSX4Hh
    @PORTCharity
    1 week ago