• Funding Research To Save Lives

    Funding Research To Save Lives

    We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how.

  • What is C.I.P.O?

    What is C.I.P.O?

    CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below.

  • About P.O.R.T.

    About P.O.R.T.

    Click “Learn More” to find out about P.O.R.T – find out about P.O.R.T, its history and about why it was founded.

  • P.O.R.T. News

    P.O.R.T. News

    Found out what’s been happening with P.O.R.T. – news, updates, fundraising and research.

  • Events

    Events

    Could you attend or undertake an event for P.O.R.T.? Click below to find out more.

Stories

  • emily-photo

    Emily’s Story

    Stories August 20, 2015

    Our beautiful Emily was born on 21st March 2003, the hospital visits started pretty much straight away. Emily was a “sicky”...

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  • Wee-Bob

    Bob’s story

    Stories March 22, 2016

    “Some people never meet their hero I gave birth to mine”

    read More
  • ella-photo

    Ella’s Story

    Stories March 4, 2016

    Ella was born on the evening of 18th February 2009. At the time we were discharged from the hospital, twenty-four hours...

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Latest stories

About

 

Welcome to the Pseudo Obstruction Research Trust (P.O.R.T.) Website. P.O.R.T. was formed in February 2006 by two families who have children who have died from Chronic Intestinal Pseudo-obstruction (C.I.P.O.) or are still suffering from this illness. The aim of the charity is to fund research into C.I.P.O. and raise public and professional awareness into this serious and sometimes fatal illness. With £320,000 of research and equipment funded so far, we need support to raise a minimum of £50,000 per year to fund this research.

Learn More Or
Email Us At sue_stewart_pseudo@hotmail.co.uk

Our Team

    • kilian

      Kilian Fitzsimmons-Wilson

      Kilian is married to wife Lindsey and they have a little boy, Charlie aged 5 who has been diagnosed with CIPO. Kilian is a Software consultant and spends much of his time presenting software...

    • Zander Fakerson 2

      Zander Fagerson

      Zander Fagerson is a Scottish International rugby player who plays for Glasgow warriors. Zander made his debut for Scotland in the six nations match against England at Murrayfield on 6th February 2016. Zander has...

    • Sue-PORT

      Sue Stewart

      Chairperson

      Sue is a pre-school assistant and has worked with young children for the last 20 years. She set up P.O.R.T. with Sonia in 2006.

    • Sonia-PORT

      Sonia Frost

      Trustee

      Emily was mum to Emily Jasmine, P.O.R.T.'s inspiration, who passed away from complications of CIPO aged only two.

    • 1109522554 Miss Lucy Watts, MBE. Picture date: Thursday 9 June 2016. Copyright: PA Photos NOT FOR PUBLICATION WITHOUT WRITTEN CONSENT OF PA PHOTOS : 020 7963 7305.

      Lucy Watts MBE

      Trustee

      Lucy is a young person with CIPO who does voluntary work with many charities and was appointed MBE in the New Years Honours 2016.

    • becky-003

      Becky Stanier

      Trustee

      Becky is Sue's daughter, diagnosed with CIPO age 14 and is a Personal Assistant to the Chairman of Southend United Football Club.

    • 17888056_1454821611209276_110734601_n

      Louise McAuliffe Roberts

      Trustee

      Married to Nick and with a daughter Chloe, Louise was a nurse on a neonatal unit prior to being medically retired. She has CIPO and Autonomic Neuropathy caused by type 1 Diabetes.

    • 10422964_10154316993695595_2818570875785619247_n copy

      Ashlee Johnson

      Trustee

      Ashlee is mum to Isla, who suffers from CIPO. Ashlee understands what it's like to be a parent of a child with the condition.

Testimonials

  • Sharing stories, advice and well wishes with others is invaluable when you have a family member with a rare and debilitating illness.

    Parent of a child with CIPO

  • One of the biggest things for me is PORT has given me hope that one day a cure will be found, it gives me comfort that I’m not alone in this battle and it’s given me support and friendship when I’m feeling alone and isolated.

    Patient With CIPO

  • This charity have an invaluable support platform, providing not only incredible contributions to research and treatments, but also providing sufferers and families with a voice.

    Patient with CIPO

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  • Ford engine plant at Dagenham Diversity Day supPORTing @PORTCharity #TEAMPORT https://t.co/TSzNkWmenu
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    4 months ago
  • I attended a research meeting yesterday and am proud that 3 projects have passed medical review and are now going t… https://t.co/wusPQRJuMQ
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    4 months ago
  • Thanks so much beautiful @IslasSmiles for your supPORT #TEAMPORT https://t.co/Gi23cuTzZ0
    @PORTCharity
    4 months ago