We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how.
CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below.
August 20, 2015
February 10, 2017
October 9, 2015
February 25, 2017
Welcome to the Pseudo Obstruction Research Trust (P.O.R.T.) Website. P.O.R.T. was formed in February 2006 by two families who have children who have died from Chronic Intestinal Pseudo-obstruction (C.I.P.O.) or are still suffering from this illness. The aim of the charity is to fund research into C.I.P.O. and raise public and professional awareness into this serious and sometimes fatal illness. With £320,000 of research and equipment funded so far, we need support to raise a minimum of £50,000 per year to fund this research.
Sue is a pre-school assistant and has worked with young children for the last 20 years. She set up P.O.R.T. with Sonia in 2006.
Emily was mum to Emily Jasmine, P.O.R.T.'s inspiration, who passed away from complications of CIPO aged only two.
Becky is Sue's daughter, diagnosed with CIPO age 14 and is a Personal Assistant to the Chairman of Southend United Football Club.
Married to Nick and with a daughter Chloe, Louise was a nurse on a neonatal unit prior to being medically retired. She has CIPO and Autonomic Neuropathy caused by type 1 Diabetes.
Ashlee is mum to Isla, who suffers from CIPO. Ashlee understands what it's like to be a parent of a child with the condition.
Ian is married to Sonia and is a Senior Supervisor at Ford Motor Company where he has worked for the last 20 years.
Kilian, a software consultant, keen rugby player and golfer, is married to wife Lindsey and they have a little boy, Charlie who has CIPO.
We are extremely excited to announce that we will again be holding one of our infamous events, the P.O.R.T. Charity Ball. The event will take place on Saturday 18th November at Stock Brook Manor Golf & Country Club. Tickets for the...
Ian Frost and his team of 12 cyclist are cycling from London to Amsterdam, starting May 24th , aiming to cover 100 miles a day (400 miles in total) All proceeds to P.O.R.T. Click here to donate to his...