We fund research into Chronic Intestinal Pseudo Obstruction, Severe Dysmotility and resultant Intestinal Failure, as well as supporting patients. Help us continue our work – click below to find out how.
CIPO is a disorder of the digestive system (also known as a motility disorder) that effects the movement of contents through the intestinal tract. Find out more by clicking below.
October 9, 2015
September 4, 2018
July 13, 2018
February 25, 2017
Welcome to the Pseudo Obstruction Research Trust (P.O.R.T.) Website. P.O.R.T. was formed in February 2006 by two families who have children who have died from Chronic Intestinal Pseudo-obstruction (C.I.P.O.) or are still suffering from this illness. The aim of the charity is to fund research into C.I.P.O. and raise public and professional awareness into this serious and sometimes fatal illness. With £320,000 of research and equipment funded so far, we need support to raise a minimum of £50,000 per year to fund this research.
Kilian is married to wife Lindsey and they have a little boy, Charlie aged 5 who has been diagnosed with CIPO. Kilian is a Software consultant and spends much of his time presenting software...
Zander Fagerson is a Scottish International rugby player who plays for Glasgow warriors. Zander made his debut for Scotland in the six nations match against England at Murrayfield on 6th February 2016. Zander has...
Sue is a pre-school assistant and has worked with young children for the last 20 years. She set up P.O.R.T. with Sonia in 2006.
Emily was mum to Emily Jasmine, P.O.R.T.'s inspiration, who passed away from complications of CIPO aged only two.
Becky is Sue's daughter, diagnosed with CIPO age 14 and is a Personal Assistant to the Chairman of Southend United Football Club.
Married to Nick and with a daughter Chloe, Louise was a nurse on a neonatal unit prior to being medically retired. She has CIPO and Autonomic Neuropathy caused by type 1 Diabetes.
Ashlee is mum to Isla, who suffers from CIPO. Ashlee understands what it's like to be a parent of a child with the condition.
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