Blog

PORT Impact Report Image

P.O.R.T. Trustee Lucy put together an Impact Report for our 10th Anniversary, looking back on the first ten years of P.O.R.T’s work. We are exceptionally proud of our charity and how it has progressed over the ten years, with our research and equipment funding total reaching £320,234 – and with an exciting potential research project, and another potential piece of work for P.O.R.T. to fund both in the proposal stages.

You can read our 10th Anniversary Impact report here.

There is a shortened version which is available here.

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Pseudo Obstruction Research Trust Patient Information Day 2015

On the 9th October 2015 P.O.R.T. held its first Patient Information Day, which was a huge success. It brought together patients, family members and professionals to share knowledge about the CIPO and related conditions as well as for patients and family members to meet others who truly understand, forging friendships and gaining a support network. The day was very informative, with talks from a range of consultants with different areas of expertise, and patients had the chance to ask questions as we had Q&A sessions with the consultants after their talks. This meant knowledge was shared, questions could be asked, but also, patients could feed back to consultants what was most troubling and most important to them, and patients came away with a better understanding of their condition and its treatment and management.

In attendance were P.O.R.T. Chairperson Sue Stewart, and Trustees Sonia Frost and Lucy Watts MBE, with consultants Professor Qasim Aziz, Dr Adam Farmer, Dr Nigel Meadows, Dr Nikhil Thapar, Dr Michael Glynn and Dr Jayne Gallagher, along with P.O.R.T-funded research nurse Laura Brockway, and approximately 60 patients and family members.

Feedback was overwhelmingly positive and we hope to hold more Patient Days in the future.

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