During Feeding Tube Awareness Week, we posted awareness posts on our social media accounts-Instagram, Facebook & Twitter. For many with Chronic Intestinal Pseudo Obstruction feeding tubes are one aspect of managing their condition. There are however many other reasons why people may need a feeding tube. We hope through the posting and sharing of our posts we helped to spread knowledge around this issue, and especially how people with CIPO are affected.
PORT has sent it’s newsletter, PORT DIGEST, out to members and is available online.
The first edition of PORT Digest is now finished and has been uploaded to our website. The newsletter contains lots of information, so please do have a read. There are articles about our current research projects and future projects in the pipeline too. Two members stories are also featured, and these share what it is like to live with CIPO. There are also articles about fundraising activities organised by and for PORT. The final page contains all the contact details and information about the charity as well as some useful tips.
Facebook donations have been a very useful way for PORT to raise money. Since PORT signed up to Facebook payments, at the end of November, we have raised £484.36. This is through people using the donate button and creating birthday fundraisers. This is a fantastic amount, in such a short space of time, so please do continue to support our charity in these ways!
PORT received a monetary donation, of £100, from The Bakemore Foundation. This will go towards printing our information booklets. We are in the process off updating these booklets. The information booklets are sent across the country to prospective sufferers, and medical professionals. They contain a lot of useful information from explaining how the gut works, and how that differs in pseudo obstruction, to symptoms and treatment options, as well as details about the charity itself, the support provided and the research funded.
Many thanks to Aranee Navaratnam for organising a Birthday Fundraiser, through Facebook. She raised an amazing £150 for PORT Charity. Thank you so much for your continued SupPORT Aranee. This was our first birthday fundraiser, and as such a simple way to raise money we hope many more will follow!
PORT members have given their pictures, which will be used for a charity single. The funds for the single will go to PORT. This is a novel and exciting fundraising venture, which will not only raise vital funds for research into CIPO, it will also help to raise awareness into the rare yet debilitating condition, which many people know little or nothing about.
Many thanks to the customers and staff of The Unicorn Pub, Marden for your kind donation of £17.67 from our charity collection pot.
Many thanks to Cheryl East, and all the staff and customers of Dreams Beauty Salon. They have donated £108.00 to PORT Charity, from the sale of sweetie cones and a charity collection pot . TEAMPORT
Many thanks to beautiful brave Nyla and her friends Holly, Libby, Darcy, Megan, Oonagh and Numratha. The girls, who attend Bristol Cathedral Choir School, organised a bake sale and raised £66.74 for PORT Charity. Beautiful Nyla suffers with CIPO. Thanks so much for supPORTing us!
PORT are now signed up to Facebook payments. As well as now having a donate button, on our charity page, people can also create fundraisers, including birthday fundraisers for our charity. We are listed as Pseudo Obstruction Research Trust. Hopefully this will give our charity another avenue to raise vital funds to continue our work.