Blog

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P.O.R.T grant funding for Dr Adam Farmer’s EVASION-CIPO project has been announced on the University Hospitals of North Midlands website. They have celebrated our prestigious grant and highlighted the fact that rare conditions need research just as much as the common conditions do.

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Today P.O.R.T held a stand at the Big Bowel Event in Birmingham, run by Bowel & Cancer Research. It was a success, lots of awareness raised for P.O.R.T, people educated about Chronic Intestinal Pseudo Obstruction and Dysmotility and we also had the chance to raise awareness of the charity with researchers and dedicated professionals.

People were very interested in the charity and its work, many of whom commented that they had never heard of Pseudo Obstruction and wanted to know what it was, but everyone who asked about the charity were amazed at our achievements – more than £400,000 of research funded in 11 years and more projects in the pipeline and a growing support network of patients in the U.K. and around the world, enabling us to reach more and more people with CIPO/Dysmotility and their families.

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P.O.R.T Trustee Ian Frost and friends and colleagues cycled from London to Amsterdam, covering 100 miles a day over 4 days. The weather was hot, the last day being 36 degrees, and they succeeded, getting to Amsterdam safely and raising a fantastic approximately £7,000 for P.O.R.T.

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The Hilton Edinburg Carlton are now supPORTing P.O.R.T. We are their chosen charity for this year, a partnership we are delighted to have. We hope the partnership between ourselves and the Hilton Edinburgh will lead to more awareness and fundraising to allow us to continue funding our vital research.

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Ford Dagenham have chosen P.O.R.T as one of their charities of the year. Recently they held a Diversity Day where P.O.R.T was in attendance to raise awareness and they raised money for us through the Diversity Day as well as the proceeds of a Soccer Saturday Football donated by Scott Minto. The combination of these raised a fantastic £861.04 for P.O.R.T and we are excited to see what the future holds in our partnership with Ford Dagenham.  

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Rakesh Patel and Paul Waldock, our wonderful London Marathon runners for 2017, raised more than £7,000 for P.O.R.T. We were very lucky to get a silver bond place, which Rakesh agreed to fulfil and run for us and Paul had applied for a place and chosen to run for P.O.R.T.

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P.O.R.T. is delighted to be able to say that Chronic Intestinal Pseudo Obstruction is included as a condition on the 100,000 Genomes Project, which we hope will lead to finding the underlying cause of CIPO and hopefully lead to treatments. Here is some information about the project and what it may mean for patients with CIPO.

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