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For all that have never seen it here’s a clip of the Eddie Stobart truck that PORT had named after our Pseudo Angel Emily Jasmine.

We were given this opportunity a few years back and PORT raised over £600 from donations from our followers in Emily’s Memory.

 

A BIG THANKYOU to Paul at Foxley Film for producing this amazing video ‘This is Charlies Day” to help raise awareness. #supPORTthecause #pseudoobstructionresearchtrust #PORT

 

 

PORT Charity raised £60,073 in our last financial year (31st March 2017).

PORT funded £126,855 towards three projects.  This is an amazing achievement for such a small charity.

PORT funded a manometry device for use in colonic manometry on behalf of the gastro paediatric department at The Royal London Hospital. (Stewart Cleeve)

PORT has funded the EVASION research project looking at the effect of transcutaneous and physiological vagal nerve stimulation on symptoms and motility in patients with CIPO/Dysmotility. This project is on behalf of Prof Adam Farmer,  University College Hospital, North Midlands and Prof Qasim Aziz Barts and The Royal London Hospital.

The identification of CIPO subgroups with underlying connective tissue disorders and the assessment of GI Anatomy, motility and response to pharmacology in CIPO subjects using novel MRI techniques, Dr. Asma Fikree / Prof Qasim Aziz.

A great year for #TeamPORT.  Thanks everyone for all the support and fundraising efforts. Heres to another great year on our mission to help all that suffer!!

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On Saturday 18th November we held our PORT Charity Ball at Stockbrook Manor with over 200 guests. A fantastic evening was enjoyed by all who attended and we raised an amazing £11,582.70. Many thanks to all who SupPORTed us by donating Auction and Raffle gifts and a special thank you l to Becky Stanier for organising the event.

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One of our supPORTers, Lesley Carmichael, set up a P.O.R.T. selling page on Facebook. This is for people to sell items through in aid of P.O.R.T. People can raise money for P.O.R.T. by advertising and selling items they have for sale via the group.

To go to the group, to go https://www.facebook.com/groups/860801327421187/ and donate the proceeds via http://uk.virginmoneygiving.com/SomeoneSpecial/portselling

Please use our selling page and #supPORTthecause.

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P.O.R.T walkers in this year’s Colourthon raised a phenomenal £12,413.25 – with money still coming in. Some walkers did the Moonlight Colourthon, a half marathon, others did the Twilight Colourthon, a 10k walk. A fantastic evening was had by all and we are astounded at the amount of money raised. Below is a selection of photos from the event, held on Saturday 1st July 2017.

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P.O.R.T grant funding for Dr Adam Farmer’s EVASION-CIPO project has been announced on the University Hospitals of North Midlands website. They have celebrated our prestigious grant and highlighted the fact that rare conditions need research just as much as the common conditions do.

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Today P.O.R.T held a stand at the Big Bowel Event in Birmingham, run by Bowel & Cancer Research. It was a success, lots of awareness raised for P.O.R.T, people educated about Chronic Intestinal Pseudo Obstruction and Dysmotility and we also had the chance to raise awareness of the charity with researchers and dedicated professionals.

People were very interested in the charity and its work, many of whom commented that they had never heard of Pseudo Obstruction and wanted to know what it was, but everyone who asked about the charity were amazed at our achievements – more than £400,000 of research funded in 11 years and more projects in the pipeline and a growing support network of patients in the U.K. and around the world, enabling us to reach more and more people with CIPO/Dysmotility and their families.

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