Blog

  • Home
  • Posts by PORT

Keep on Walking! 2018 TEAM PORT for the Southend Colourthon 7 th July 2018

All entrants from Team PORT completed the Southend Colourthon walk this year. Everyone completed their walk at different times but it was the taking part that was most important to them all, a fun event, with a great Team spirit. Chairperson and Team leader Sue Stewart mustered a team of 23 walkers to take part on behalf of PORT. This gave the charity a good level of entrants compared to other charities, even some that are well known fielded a lesser number of entrants. For Sue herself this was her 6 th Colourthon half marathon, supported by husband Barry Stewart (4th time) and daughters, Jessica Roskilly-Stewart, and Rebecca Stanier both 3rd time. Friends of PORT Clare Mitchell 2nd time, Team Debbie Callaghan 2nd time, and for their 1st attempt were Team Joe Smiles Team, Team Kaylie Finch’s Earl Grey Pub Team, and lastly Sam Smith who only signed up to walk the day before the event.

As at the time of writing this £11,451 has now been raised from this event for PORT to fund research so a massive thanks to all those who took part, and their sponsors. An incredible amount big thank you from Sue, well done to all.

If we are able to have more support next year who knows what we can attain in sponsorship, so get the word out to friends, and family to become PORT walkers in July 2019!

The event is normally held on the first Saturday in July so pencil it in on your 2019 calendar now! Best wishes TEAM PORT – SupPORT the cause.

 

Screen Shot 2018-07-13 at 14.18.16 Screen Shot 2018-07-13 at 14.20.02 Screen Shot 2018-07-13 at 14.21.33 Screen Shot 2018-07-13 at 14.21.19

Our Trustee from the North Kilian and his wife Lindsey Fitzsimmons-Wilson hosted a Black Tie Ball at Blackburn Rovers Football Club .

They were joined by family, friends and other trustees from up and down the country and raised a massive £16,200!!

They also organised a little surprise for Head Trustee Sonia Frost who was greeted at the event by the Eddie Stobart Truck that is named after her daughter Emily Jasmine Frost.

a BIG Thankyou to everyone that attended, and that bought raffle tickets and auction items on the night.

#supPORTthecause !!!!!!!

 

Screen Shot 2018-07-13 at 14.00.50Screen Shot 2018-07-13 at 14.00.29Screen Shot 2018-07-13 at 14.00.00Screen Shot 2018-07-13 at 13.59.40Screen Shot 2018-07-13 at 13.58.57Screen Shot 2018-07-13 at 14.02.19

 

A Big Thank you to Finley Fitzsimmons-Wilson, age 7 from Longridge (pictured right)

He took part in the Hero Assault Challenge, Preston alongside his Mummy Natalie and raised a massive £500 for PORT Charity

Finn completed this challenge especially for his older cousin Charlie Fitzsimmons-Wilson, Age 9 (pictured left) who suffers from Pseudo Obstruction.

Thanks for supPORTing PORT!!!

Screen Shot 2018-07-13 at 10.10.46

 

 

For all that have never seen it here’s a clip of the Eddie Stobart truck that PORT had named after our Pseudo Angel Emily Jasmine.

We were given this opportunity a few years back and PORT raised over £600 from donations from our followers in Emily’s Memory.

 

A BIG THANKYOU to Paul at Foxley Film for producing this amazing video ‘This is Charlies Day” to help raise awareness. #supPORTthecause #pseudoobstructionresearchtrust #PORT

 

 

PORT Charity raised £60,073 in our last financial year (31st March 2017).

PORT funded £126,855 towards three projects.  This is an amazing achievement for such a small charity.

PORT funded a manometry device for use in colonic manometry on behalf of the gastro paediatric department at The Royal London Hospital. (Stewart Cleeve)

PORT has funded the EVASION research project looking at the effect of transcutaneous and physiological vagal nerve stimulation on symptoms and motility in patients with CIPO/Dysmotility. This project is on behalf of Prof Adam Farmer,  University College Hospital, North Midlands and Prof Qasim Aziz Barts and The Royal London Hospital.

The identification of CIPO subgroups with underlying connective tissue disorders and the assessment of GI Anatomy, motility and response to pharmacology in CIPO subjects using novel MRI techniques, Dr. Asma Fikree / Prof Qasim Aziz.

A great year for #TeamPORT.  Thanks everyone for all the support and fundraising efforts. Heres to another great year on our mission to help all that suffer!!

On Saturday 18th November we held our PORT Charity Ball at Stockbrook Manor with over 200 guests. A fantastic evening was enjoyed by all who attended and we raised an amazing £11,582.70. Many thanks to all who SupPORTed us by donating Auction and Raffle gifts and a special thank you l to Becky Stanier for organising the event.

Read More

One of our supPORTers, Lesley Carmichael, set up a P.O.R.T. selling page on Facebook. This is for people to sell items through in aid of P.O.R.T. People can raise money for P.O.R.T. by advertising and selling items they have for sale via the group.

To go to the group, to go https://www.facebook.com/groups/860801327421187/ and donate the proceeds via http://uk.virginmoneygiving.com/SomeoneSpecial/portselling

Please use our selling page and #supPORTthecause.

Read More