Blog

On Saturday 18th November we held our PORT Charity Ball at Stockbrook Manor with over 200 guests. A fantastic evening was enjoyed by all who attended and we raised an amazing £11,582.70. Many thanks to all who SupPORTed us by donating Auction and Raffle gifts and a special thank you l to Becky Stanier for organising the event.

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One of our supPORTers, Lesley Carmichael, set up a P.O.R.T. selling page on Facebook. This is for people to sell items through in aid of P.O.R.T. People can raise money for P.O.R.T. by advertising and selling items they have for sale via the group.

To go to the group, to go https://www.facebook.com/groups/860801327421187/ and donate the proceeds via http://uk.virginmoneygiving.com/SomeoneSpecial/portselling

Please use our selling page and #supPORTthecause.

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P.O.R.T walkers in this year’s Colourthon raised a phenomenal £12,413.25 – with money still coming in. Some walkers did the Moonlight Colourthon, a half marathon, others did the Twilight Colourthon, a 10k walk. A fantastic evening was had by all and we are astounded at the amount of money raised. Below is a selection of photos from the event, held on Saturday 1st July 2017.

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P.O.R.T grant funding for Dr Adam Farmer’s EVASION-CIPO project has been announced on the University Hospitals of North Midlands website. They have celebrated our prestigious grant and highlighted the fact that rare conditions need research just as much as the common conditions do.

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Today P.O.R.T held a stand at the Big Bowel Event in Birmingham, run by Bowel & Cancer Research. It was a success, lots of awareness raised for P.O.R.T, people educated about Chronic Intestinal Pseudo Obstruction and Dysmotility and we also had the chance to raise awareness of the charity with researchers and dedicated professionals.

People were very interested in the charity and its work, many of whom commented that they had never heard of Pseudo Obstruction and wanted to know what it was, but everyone who asked about the charity were amazed at our achievements – more than £400,000 of research funded in 11 years and more projects in the pipeline and a growing support network of patients in the U.K. and around the world, enabling us to reach more and more people with CIPO/Dysmotility and their families.

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P.O.R.T. Trustee Kilian Fitzsimmons-Wilson organised a charity golf day, which raised a fantastic £6,250 for P.O.R.T. A great day was had by all.

Thank you Kilian and everyone who attended for raising such a fantastic amount for P.O.R.T charity. #TEAMPORT

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P.O.R.T Trustee Ian Frost and friends and colleagues cycled from London to Amsterdam, covering 100 miles a day over 4 days. The weather was hot, the last day being 36 degrees, and they succeeded, getting to Amsterdam safely and raising a fantastic approximately £7,000 for P.O.R.T.

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The Hilton Edinburg Carlton are now supPORTing P.O.R.T. We are their chosen charity for this year, a partnership we are delighted to have. We hope the partnership between ourselves and the Hilton Edinburgh will lead to more awareness and fundraising to allow us to continue funding our vital research.

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