Ruby Skye Johnson was born on 6 th April 2007. Straight away she went to the special care baby unit where they discovered her bladder was 10 times the size it should be. The only way to correct this way to have a long term catheter fitted through her tummy. She had problems with her bowels too, but they appeared to resolve by themselves and after 3 very scary weeks she was allowed home. Mum and dad trained up how to change the catheter and things settled into some kind of normality for a few months. But then she started having problems with her bowels. They would obstruct, but an x-ray would show there was no mechanical obstruction; it was a case of the bowel randomly shutting down. Her stomach would blow up to huge proportions and she would require hospital admission because of vomiting and dehydration.